Girl born with red scaley skin

There was a girl born with a disease that makes her skin red and scaly. She has to peel off the top layer of her skin everyday and put a thick layer of lotion on top after she does. She gets a lot of weird looks from people, and questions like, "Did you put your daughter in a microwave?" If I were this girl, I wouldn't really know what to do. Applying lotion to your skin every half hour of the day would just be a pain. But in the aritcle it says she is happy and has lots of friends at school, so i'm glad she's atleast happy with her life.